Thursday, August 15, 2013

Short rambling update

I know, another long stint with no update.

I had my appointment with the vascular doctor on last Tuesday. My day was 2 appointments. The first was a neuro block injection. While the doctor was super nice and Nightmare before Christmas fan and knew about build-a-bears, but getting an injection in your neck sucks no matter how nice the doctor is. I was still pretty shaken up over the shot so I didn’t notice much of anything at first. By the time I’d gotten to my second appointment with the vascular doctor and was in the room with him, I noticed just what an improvement there was. It then struck me that just a short time before that I had been able to fill out paperwork with a stick pen with no brace. 

So… I broke down on the poor guy right there. It was the first time in about 10 years I haven’t been in some level of pain. After a few more tests, Dr. Johanson had determined I’ve lost about 70% of the strength/use of my hand. I’m borderline disabled. I’ve always just kind of put up with it and done what I’ve needed to do despite pain and discomfort, but hearing numbers put to it was really frightening and eye opening. I’m so mad at myself for waiting this long. I might not get full sensation back in my finger tips. I currently don’t feel hot or cold well. 

So I have Thoracic Outlet Syndrome and only have 2 options at this point for treatment. The first is botox injections. Insurance doesn’t cover them and it would be almost $900 every 3 months. The second is surgery which is 90% effective and covered by insurance. I’m going with the for sure method.

I’m set up for surgery next month. Aside from being terrified of staying in the hospital overnight, I’m actually doing really well with this. Well… there is the whole stress with work because I’m sure I’m going to come back to a mess after 3 weeks out. I know this will be for the best though. I can sew again and paint and draw. If it wasn’t for my friendy at work, I think I would have given up trying to find an answer.

I know this is rambling and quick, but typing has been hard on me after doing it all day at work. The good news is that I finally broke down and asked for something for pain. I’m not so cranky now! While I have a high tolerance, I really didn’t realize how high until that injection and the pain was gone. I’m really looking forward to when it’s gone for good.


  1. This comment has been removed by the author.

  2. I am glad to hear that you got things figured out. I can imagine how hard it is for you to have to deal with being in pain like that. I hope everything goes well and you feel better soon.